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The Narcoleptic’s Best Friend. The Migraineur’s Often Arch Nemeisis.

January 30, 2016

I’m a living, breathing contradiction 👌🏼

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Posted in: chronic daily headaches, fighter, invisible illness, life, migraines, narcolepsy, spoonie, spoonie community, spoonie life, Spoonie strong, spoonies, struggle, this is my journey, Uncategorized, Weekend | Tagged: bed, feeling low, migraines, my journey, my story, narcolepsy, need help, sleep, struggles

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Song of the Week: “Slow it Down” by The Lumineers

Somebody Let This Stampede of Elephants Out of My Skull.

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A great reminder that chronic illness is a journey filled with many ups and downs 🎢 If you’re like me and are using several different treatments at one time, your journey becomes a trial and error process of learning which treatment is actually working and how 📊and in that process, your symptoms get worse, get better, or stay the same and it’s usually never predictable. Just keep riding the 🌊 and be kind to yourself along the way 💛 via: @thechrillness #chronicillness #invisibleillness #wednesdaywisdom

Me and my sweet tooth love #nationalcookieday 🍪 Something I’ve noticed over the many years of having migraines, is that my sugar cravings spike right before and right after a migraine attack 📈 how do you deal with these sugar cravings? Have you noticed a linkage between sugar and your migraines/headaches or other conditions? 🍭 📸: @xp3cto . . . #migraine #sugar #invisibleillnessawareness #chronicillness

🎄December Intentions 🎄 Focusing this month on my spiritual mindset and living intentionally day to day. ❄️”Be more present” stop worrying about where I could be or where I will be tomorrow, and start relishing in or accepting whatever moment I’m in right now. 🙇🏼‍♀️ ❄️”Learn something new every day” whether it’s through a podcast, a book, a friend, at work, etc., I want to keep my mind stimulated and pick up new knowledge wherever I can! 📔 ❄️”Ten minutes of meditation or prayer each day” doing so helps me set the tone for the day & helps me get in the right mindset to take on whatever may come at me that day 🙏🏼 ❄️”Foster a giving heart” because this is the season of giving and I want to remember that even when I think I don’t have a lot, there is always someone out there who has less and could use our help. We only get out of this world as much as we give back to it 💛 . . . What are your #intentions for #december?

Cold weather season is here! ❄️and I’ve got some amazing accessories to wear thanks to my very talented friend, @savvystitchess 💕Honestly, even when it’s not that cold out, I still feel like I’m always colder than everyone else. But now I know that I can blame it on my #ehlersdanlossyndrome & #pots because poor temperature regulation are common symptoms of both. Anyone else have problems keeping warm or notice these symptoms in themselves? • • • Check out my friend’s #etsy shop @savvystitchess for beautifully handmade scarves, hats, headbands and more! 🧣

After an amazing #friendsgiving yesterday, all I want to do is leave work, lay in bed and sleep off all that turkey tryptophan 🦃😴 Having your room set up with all your essentials next to you on your night stand can really help your nighttime routine & can be a lifesaver if you wake up with lots of pain. I keep my books, gratitude journal, Advil, water, calming lavender lotion & essential oils on my nightstand 🛌 • • • What is your nighttime routine? What do you make sure to always have next to your bed?

Round 3️⃣of #aimovig was this week! I’m hoping to see some improvement , but trying to remind myself that if this doesn’t work, there are still other avenues I can go down 🛤 & other treatments I can try 👩🏼‍⚕️ I wanna know: what has your experience with aimovig been like? #migraine #invisibleillness #spoonie

Disclaimer!

Information posted here should not be considered medical advice; this is a personal blog that is not intended to replace information provided by health care providers. You should always consult licensed medical professional before undergoing any treatments. You, the reader, agree to take information and/or advice, at your own risk. Links to other website and content are not endorsements of those sites or content/services/products. I just provide information that I have found personally helpful.

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