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Finding strength in the pain while learning to adapt to and thrive with chronic illness

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What’s the Word? “Lassitude”

All the Narcoleptics out there (and all other spoonies to some degree) I know will relate to this word

💤💤💤

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Posted in: doodles, invisible illness, narcolepsy, spoonie, spoonie life, wednesday words, What's the word, Word of the week | Tagged: lassitude, narcolepsy, sleepy, spoonie, wednesday words, Word of the week, zzz

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You Are NOT a Burden

Thursday’s Tips and Tricks: Even When Discouraged, Keep Trying New Methods/Treatments

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With chronic headaches, it’s sometimes hard for me to exercise because I know the pain will only intensify. But one thing I do love... is to DANCE 💃🏼 Once a month I go to @tipsy_tappers where my lovely friend @lindstew120 teaches us a new tap dance each month. It’s so fun & when my pain is low, it’s a great way to exercise with my friends 👯‍♀️💕 What activities do you all do when you are feeling well enough to get up and move?

When you have chronic pain or a chronic illness, it’s not uncommon to spend some weekends cooped up in your house trying to be your own nurse, missing out on having fun with your favorite people. That’s why I’m so grateful for weekends like this weekend, where my pain was low and I got to spend three days with friends and family that I absolutely adore 💕 Hope everyone had a great weekend!

My first round of Aimovig consisted of nervous laughter, supportive friends, a few seconds of bravery & ended with a victory dance 🙌🏼 I’m excited to see if this new medication will bring me improvements & I am optimistic on trying this new treatment. I’ll be following up on any changes I notice after this first dose! Stay tuned ☝🏼

Happy #September 🍁 This month I’m really focusing on the idea of “a little less talk, a lot more action” 🧘🏼‍♀️📝and accepting where I am & how I feel in the present moment - good or bad. 💛 ••• What are your #intentions for this month?

Falling is an accident. Staying down is a choice. Everyone stumbles & falls in life. Sometimes it feels like you’re falling more than everyone around you, especially when your health keeps knocking you down, but they’ve all fallen before too. Make the choice to get back up & help those around you get back up too 💜 ••• Also, aerial yoga is hard (but really fun 🤸🏼‍♂️)

Mom appreciation post 💞 Moms have a job unlike any other and mine kicks butt at it. In addition to all of the million other things she does for me, she has been there for me day after day during the many years of my health challenges. Doctor appointment after doctor appointment, hospital visit after hospital visit, migraine after migraine. She’s been there. No matter what. I’m one lucky gal 👩‍👧#wcw #thanksmom #mom

Disclaimer!

Information posted here should not be considered medical advice; this is a personal blog that is not intended to replace information provided by health care providers. You should always consult licensed medical professional before undergoing any treatments. You, the reader, agree to take information and/or advice, at your own risk. Links to other website and content are not endorsements of those sites or content/services/products. I just provide information that I have found personally helpful.

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