This pretty accurately describes the majority of a spoonies life. A confused jumble and medley of things.
Symptoms (and more) are so unpredictable. One day we might feel great and the next day we may feel like we cannot even fathom getting out of bed. Treatments are also unpredictable. Some treatments work, even if only a little bit, and some treatments work so poorly that they may even make our symptoms worse.
Life is a rollercoaseter for everyone. Ups and downs, unforeseen curves, etc. For people living with chronic illness or disabilities, life is a completely unstable rollercoaster. It’s a gallimaufry.
Spot on 👍🏼