I’m a 25 year old trying to live a normal young-adult life while battling chronic daily headaches, migraines, narcolepsy, mild POTs, hypermobility EDS and severe food allergies. The majority of these diagnoses came later in my life, however, my headache disorder (my most debilitating diagnosis) has been my partner in this life more than a decade. What started out as exertion migraines while playing softball/exercising during my youth and teen years later evolved into a daily battle–a headache that was there when I woke up and when I went to sleep. A headache that while it isn’t always a high intensity pain every day, it is still present every day. It’s gotten to the point where I could not tell someone what “normal” feels like, because I don’t remember what it feels like. When people ask “do you have a headache today?” it gets exhausting replying “I have a headache every day.”
My friends used to joke that I was the “medical marvel” or “medical mystery” of the group. Unfortunately, I fit that title. Along with my daily headaches, I’ve visited countless ERs for causes doctors never could pin point. I’ve had skin, teeth, GI, chest, back, eye, etc issues that take up time I would rather be using to focus on how to fix my headaches. I’ve seen every type of doctor their is (pretty much) for a multitude of different issues that seem to occur like clockwork.
As one can imagine, I’ve faced my fair share of emotional and mental low points because of all of this. I’m only human. But my goal here is to not only lift my own spirit and give myself new strength, but also to lift the spirits of others and show people that they have much more strength than they give themselves credit for. We can overcome all of life’s adversities with enough courage and gumption.
What it comes down to is this:
I’m here to use my love for writing to not only give myself a release from the pain and health issues that I face, but also to help fellow friends and spoonies who battle any illness/disorder/hardship alongside me every day. I want to help you see sunshine where you used to only see darkness. To see the sunflower growing in the distance.
We all have our own battles and often feel like we’re fighting them alone. We can often end up feeling like no one else understands what we’re going through. I want to help you see that we’re not alone.