Awareness · invisible illness · narcolepsy · spoonie

When Sleep Disorders Go Unnoticed

An estimated 50 to 70 million Americans chronically suffer from a sleep or circadian-related condition (Project-Sleep). And it turns out I am one of those people. However many sleep disorders go undiagnosed or unnoticed simply because people don’t realize they have them. I was one of those people for so many years of my life.… Continue reading When Sleep Disorders Go Unnoticed

chronic illness · encouragement · spoonie · struggle

Scars

Scars. We all have them. Whether they’re visible on our skin or deeply hidden underneath it. Either way, we often times try to hide them for everyone else. Doing our research into the most effective cream or at home treatment to rid our skin of its imperfections. Putting on a brave face for the world,… Continue reading Scars

chronic daily headaches · chronic illness · encouragement · migraines · spoonie

Patience is A Virtue

Growing up we are told to “be patient.” Starting from when we were just little ones, we would hear “be patient” from our parents as we relentlessly tugged on their clothes to get their attention. As adolescents, we would beg for the newest thing to keep up with the trends and fit in with our… Continue reading Patience is A Virtue

chronic illness · patient leader · spoonie · wego health

2017 WEGO Health Awards–Vote for The Headache Heroine!

I am excited to share (even though I may have already initially shared) that I have been nominated for the WEGO Health Award in the 6th Annual WEGO Health Awards! Last year I was nominated for three categories and a finalist in two. This year, I’ve been nominated for two categories: Best in Show: Instagram  and… Continue reading 2017 WEGO Health Awards–Vote for The Headache Heroine!

chronic daily headaches · chronic illness · patient leader · spoonie · wego health

Vote for The Headache Heroine in the 2017 WEGO Health Awards!

I’m so happy, humbled and honored to say that I’ve been nominated again this year for the 6th Annual WEGO Health Awards!!   Last year I was nominated and became a finalist in three different categories. It was such a cool experience and I got to speak with so many wonderful patient leaders. This year,… Continue reading Vote for The Headache Heroine in the 2017 WEGO Health Awards!

adapt · chronic daily headaches · invisible illness · my journey · spoonie

Do Only What You Can Do Today to Create The Reality You Want for Yourself Tomorrow.

  I have a very hard time accepting my own reality. I’m sure many people experience that every once in awhile. Like when you were younger and you were grounded but you really wanted to go to that party, so you convinced yourself that you weren’t grounded and you went anyways, only to get into… Continue reading Do Only What You Can Do Today to Create The Reality You Want for Yourself Tomorrow.

Awareness · Ehlers-Danlos Syndrome · spoonie

Ehlers-Danlos Awareness Bundle Giveaway!!

I’m co-hosting a giveaway for an Ehlers Danlos Syndrome awareness bundle with five other awesome bloggers!!  My co-hosts are Hannah from Sunshine and Spoons, Sarah from My Stripy Life, Brittany from A Southern Celiac, Sara from A Zebra Writes, and Jenni from 1visibl3Girl Giveaway rules:  Shipping for the bundle is free to residents of the… Continue reading Ehlers-Danlos Awareness Bundle Giveaway!!