The Lotus Flower

It wasn’t planted in a bed of full soil among other lucky seeds. It wasn’t given what others were blessed with. It was born an underdog.

I was not built to live in a fully healthy body like so many others around me. I was handed cards that others have been blessed not to have received. I was born an underdog.

It grows within muddied waters and it has to push its way out to get some light in its life.

I continue to grow despite each new obstacle that life throws my way. I push my body to whatever helps it feel healthier.

It reaches the light, blossoms and thrives despite its unfavorable beginnings. It is a Cinderella story.

I push myself further and harder each day so that I, too, can blossom. So that I may reach my sun and come out on top, despite the unfavorable circumstances I’ve been given. Despite the never ending headaches and the on-going speed bumps in my journey to find treatments that help. Despite the wear and tear that my heart, mind and body have undergrone throughout it all.

I will become the Cinderella story.


 

 

Tuesday Tunes. 🎧 Because Music Heals🎧

So instead of doing a song of the week, I’m now going to be sharing what I call: Tuesday Tunes! 

Same concept as my song of the week posts: they will be songs that I find myself feeling a close connection to and hope to help others feel the same way or inspire people to seek their own songs that make them feel supported, heard, loved, inspired, excited, motivated and understood. Because, music heals, people. We all need music for the soul to turn to.

My first Tuesday tune is…drumroll pleaaaaasseee: “Another Man’s Shoes” by Drew Holcomb. (I listened to the acoustic version on Spotify: that’s the one I recommend listening to)

  
It’s essentially pointing out that everyone has something that they’re struggling with so we need to try to put ourselves in their shoes as to not judge them. And if we do that and still can’t understand that they too may be facing a hardship, then we need to keep on walking. 

  
It’s a song that made me feel understood not only as a spoonie but as a human being. 

Give it a listen! 

Another Man’s Shoes–Listen here!

Beautiful Irony: A Spoonie Takes on the Town 

   
Finding it ironic (but ironically beautiful) that I felt well enough and excited to go out on #NarcolepsyAwarenessDay 😌👍🏼 My lifestyle now is so different than the lifestyle I was able to lead a year ago in college. Not being able to adventure out every weekend anymore due to health shenanigans sometimes makes me sad, but it also makes it much more exciting and gives me more to look forward to when I actually make it out now. 💃🏼 

We have to take advantage of each and every day that we feel good enough to spend time with our friends and family and when we feel good enough to embrace our choice of fun.

 

Thursday’s Tips and Tricks: Even When Discouraged, Keep Trying New Methods/Treatments 

The Daily Migraine is a site that brings hope and encouragement to people who suffer from chronic migraines. Even though I have chronic headaches with sporadic migraines, meaning I’m not their EXACT audience, this site is so relatable for anyone who suffers from any type of headache. 

It’s where I picked up this weeks “tips and tricks” idea:

  
When we feel like we can’t try anymore. When we think “what the hell is the point of trying another medication, another therapy, or any other treatment thrown our way?” When we feel like there’s no point in trying anymore. 

This is when we must push ourselves to try even harder. 

I have tried so many medications that I don’t even remember all of them. Honestly, my doctor will say “oh have you tried medication___?” And I say “No, what’s that?” And then they will say “Oh wait, I see in your records you tried that a few years ago” yeah.. It’s sad. 

I’ve seen specialists, GP’s, holistic doctors, etc. I’ve tried it all. Explored it all. Or have I?

There’s always something new to try and you owe it to yourself, to your body, to your mind, to try it all (given its safe for you.) 

Listen to your doctors (when you have a good relationship with them.) Do your own research. Keep on trying.

You Are NOT a Burden

A couple of weeks ago, I found myself questioning everything relating to my relationships with my friends and family. Did they see me as a weight on their shoulders? Did they think I judged them for not being able to understand my situation or for not being able to put themselves in my shoes? Did they find it too tasking to have to take care of me when my head is throbbing too hard to move from bed? But then I thought: If that’s what they think, then they probably aren’t in my life anymore. You see, those who find you to a burden, they’ve probably been out of the picture for a long time now, and you’re better off that way. Because, friend, you are anything but a burden to the people who truly care about you.

You are not a burden. You have a burden, which by definition is too heavy to carry on your own

You are not a burden.

You are a miracle, actually. God gave you the gift of life. He chose you to be here, wandering this mysteriously gorgeous Earth.

You are a friend. Make a list of the people who invite you on adventures, who have a hundred beautiful, ridiculous, embarrassing yet awesome pictures with you in them, and who you share endless pizza dinners (lunch, breakfasts, snacks, don’t lie) with. The people you make laugh when they want to cry and whose aid you go running to when they’re facing a hard time. You are a friend to so many.

You are a daughter, son, sister, brother, granddaughter, grandson, niece, nephew, aunt, uncle, etc. Think back to every holiday being surrounded by the few or many special people who you know you can always run home to, no matter what. The ones who you share your best memories with and experienced your biggest arguments with. You are their family. Without you, they would be one less.

You are a gift. When you shine your light on this world and share yourself with the people in it, I promise you that you are presenting something unique that no one else is able to. You have a purpose here—a purpose designed solely for you.

You are a warrior. The physical pain you endure every day, some days worse than others, is a pain not many could endure. Every day you’re getting stronger, even when it feels like you’re weakening. You fight through the aching, throbbing, pulsing, nauseating, piercing, and everlasting horrific sensations that are indescribable to others who don’t know what it feels like to be in your body.

You are a fighter. You fight through that pain, and somehow continue to keep moving forward in your journey. You fight on, whether it’s getting through the work day without having to call out early due to a worsening symptom or it’s biting your lip to fight the pain during your hundredth unsuccessful IV insertion. You fight through the frustration, sadness, anxiety, loneliness and helplessness that come along with your physical pain. Your fortitude is immeasurable in size.

You, my dear friend, are not a burden. Your illness is a burden. It is your burden. But even being solely yours, it cannot be carried by you and you alone. Because you are a friend, family member, gift, warrior and fighter, the chances are that you have a support system to help you carry that burden. Do not be afraid to ask for help. For the ones who are meant to stick around, will ask how they can help lift that burden whenever they can. You are not a burden and you were not made to carry this burden alone.

Sleep Awareness Week Day 1: Get Some Sleep, Y’all! 

  
As a spoonie with narcolepsy, I very much so cherish my sleep. Sometimes that sleep happens at noon, sometimes it happens on the floor, sometimes it happens under my comfy cozy blanket. It’s hard to get myself to go to sleep, when I have so many tasks to tackle each day. I’m sure you all feel the same way. Our days are so packed that we try to jam everything in and we end up losing sleep because of it.

Let’s all do our minds and bodies a favor and get a good 7-9 hours of sleep tonight. 

Shhhhh! If you listen closely, you can hear your pillow calling your name 💤