What’s the Word? 

HARMONY: a pleasing combination or arrangement of different things. 

  

 As someone with chronic headaches, episodic migraines, narcolepsy, and severe food allergies, plus other medical mysteries that arise, harmony is a word in rarely use. I’m sure other Spoonies and people with chronic health issues can say the same. It always seems that my health problems exasperate at one time, so more of an unpleasant combination of different things. 

However, it’s a word I hope to use more often and it’s a feeling I’ve come to truly recognize and cherish. I try not to overlook the fleeting moments of harmony in my life, because I know they’re something special. 

What’s the Word: Generate

  
To cause to arise or come about.

Any spoonie knows that a lot of the journey involves waiting around for a diagnosis, test results, treatments, answers, and seeing if treatments are even working. Sometimes (too often) doctors can’t figure us out. 

We wait around for positive things to happen in a world where we run into so many road blocks.

Sometimes, though, it’s up to us to take control of our own journey. Be the captain of your own ship, as they say. 

We need to generate positivity in our lives. If we wait around for the positive things to happen to us, they rarely will. 

This is your journey–you’ll be amazed what you can do with it when you put your back into it. 

Monday Mantra 

  
Trying to adopt this and implement it in all aspects of my life today, next week, and beyond. 

Fear is inevitable (for most people. Superman, Morgan freeman, and Chuck Norris excluded, obvs). There’s nothing wrong with feeling fear. It doesn’t make you weak or inferior. It makes you human. Don’t let people tell you to not be afraid. Frankly, because no one else besides you knows what you’re up against.

However, don’t let that fear take over your life. Instead, let it fuel your fire and push you toward learning how to strike that fear from your life.

Don’t let fear hault your progress. Don’t let fear make you stop in your tracks, because what’s life if not a journey? Fear is just a small part of it. 

Even Big League Pain Meds Won’t Help This Hall of Famer 

It’s been a full week since this  pounding, throbbing, pulsating, evil like migraine has started. 

With no end in sight, I went to the ER for acute treatment to at least get rid of it for a while.

After 4, yes 4 tries to get an IV in me, I was administered the big pain killers. 

Sidebar: I’m sorry but even if I don’t have the greatest of veins, it shouldn’t take 4 very painful tries to get an IV. Also don’t ask me “are you usually difficult when it comes to IVs?” Lady, even when I’ve been very dehydrated, people have gotten my vein on their first try. This is the second time at this same hospital that they have take 4 times to get a vein. And mind you, they hit the wrong place a couple times cuz it was much more painful than normal.

Ok sorry, to continue:

I was hopeful that at least this would get rid of my migraine until tomorrow.

Well, I felt relief for all of an hour. And then dude hammering away in my brain started hammering away again.

The pounds. The thuds. The beating. 

It all is back. 

So now what? What’s a girl to do now? 

I’m trying very hard to trust in God’s path for me. Trying very hard to keep the faith strong when the entirety of me is weakened to a pulp.

My fear is an ocean and my worries are a swarm of gnats in the summer heat.  

  
Will try to sleep now and pray that tomorrow brings new hope, new relief, (and once science gets there, a new brain 😁) 

In high need of good thoughts, prayers, advice, hugs, and puppy cuddles. 

I accept any or all of the above 

💛

Song of the Week: “Slow it Down” by The Lumineers 

Song of the Week: “Slow It Down” by @thelumineers 
This song stops me in my tracks every time it plays. I’ve used it as a pillow to lay my head down on during times when I’ve felt defeated, overwhelmed, and discouraged. 
One of my favorite lines of any song is in this song:

And when she stood, she stood tall

It takes a lot to stand up every time you get knocked down–especially when you’re getting knocked down over and over again. And sometimes you just can’t stand up after every knockout. But I tell you this, when you do stand up to all the struggles life’s been throwing you, people will notice and stare in awe.

This song comforts me in a blanket of understanding when I don’t have the strength to stand, but encourages me to gather the courage to do so. Maybe it can do the same for you. 💙

Do any of you feel a similar connection to this song? Or have a song that makes you feel a similar way?

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