This pretty accurately describes the majority of a spoonies life. A confused jumble and medley of things.
Symptoms (and more) are so unpredictable. One day we might feel great and the next day we may feel like we cannot even fathom getting out of bed. Treatments are also unpredictable. Some treatments work, even if only a little bit, and some treatments work so poorly that they may even make our symptoms worse.
Life is a rollercoaseter for everyone. Ups and downs, unforeseen curves, etc. For people living with chronic illness or disabilities, life is a completely unstable rollercoaster. It’s a gallimaufry.
Spot on 👍🏼
Wednesday words ⚡️(Adj.) Vatic
Maybe I can’t speak for everyone with chronic illnesses, but I know that I find myself trying to predict my “inevitable” future all of the time. I say things like “well I know my head will be really bad this weekend” or “I’m sure I’ll be feeling crappy still” etc. everyone always says “don’t think that way.” It’s a lot easier said than done for someone who has seen the same headache patterns continue for years now.
But even though I don’t always do it successfully, I do try my best to not think so negatively and I try not to predict how I’ll be feeling in the future 🔮
A word for dreamers. A word with such an idealistic, beautiful yet disappointing definition tied to it.💔 This is a word I don’t exercise often in my vocabulary, rather I store it away for when I drift off into dreamland 🌀🌃
I so wish that there was one solution and or answer to all of yours and my problems, illnesses, difficulties, what have you. What I wouldn’t give for that to be a reality. 🌠